Archive for the ‘ Topics ’ Category

Focusing on tweetchats and research – #hcsm for Nov. 22, 2015

Normally, #hcsm has topics submitted by the community. This will be true for our upcoming chat on Sunday, November 22, 2015 (as always at 8pm CT) – but with a twist!

Peter Chai (@PeterRChai), Megan Ranney (@Meganranney), Ed Boyer, (@toxinnewengland) and Rochelle Rosen have submitted a set of topics about using tweetchats for research. The twist? The tweetchat itself will be part of an IRB-approved research study exploring more about using tweetchats for this purpose – and #hcsm participants will be the participants in the study, as well, unless you choose to opt out.

What you should know about the Nov. 22, 2015 tweetchat and participating (or opting out) of the research study:

  1. You can opt out of the research study, even if you still want to participate in this #hcsm chat! Just contact the researchers by Twitter (send a private message to one of the study investigators (@peterrchai, @toxinnewengland or @meganranney)) or by email (peter.chai@umassmemorial.org) within five days of November 22. If this happens, the study investigators will delete your tweets from the data set. 

    If you do participate in the Nov. 22, 2015 #hcsm chat and do not opt out, your tweets may be analyzed as part of the research study. 

  2. The purpose of this study is to describe how researchers can use twitter to advance focus groups on development of new technologies and interfaces.
  3. You can read more in the IRB-approved factsheet here.

What are the topics for the tweetchat on Nov. 22 and the research study?

If you’re familiar with #hcsm, you know that the moderator will send out topics throughout the chat. The moderating Twitter account, where the topics are announced, is @HealthSocMed (which is @DanaMLewis). The three topics are listed below, along with some additional context and questions that you may also want to answer during the relevant topic time.

TOPIC 1 – What is difference in researchers using tweets from tweetchat for research; vs creating a tweetchat *for* research purposes? #hcsm

* How should people be recruited for each?

* What are the pitfalls for each?

TOPIC 2 – Would you be comfortable participating in a tweetchat for health research? What would you be comfortable sharing vs. not? #hcsm

* Have you participated in a tweetchat for research in the past? What was your experience like?

* Would you change your tweets if you knew a researcher would be reviewing them?

TOPIC 3 – Twitter=public; research=bound by confidentiality. How do these concepts impact opportunities for research in tweetchats? #hcsm

* Would your answers to T2 change if you would have the chance to participate in a private tweetchat vs. a public one?

* Is it important for you to give explicit consent to have your tweets analyzed?

Please note: the normal #hcsm ‘community rules’ still apply during this chat. The #hcsm community rules that apply during the Sunday night chats are simple: try to stay on topic; be respectful of others (including avoiding spamming); and have fun!


What if I have questions?

If you have any questions, concerns, or complaints, or think that the research has hurt you, you can talk to the research team at peter.chai@umassmemorial.org or Edward.boyer@childrens.harvard.edu. This research has been reviewed and approved by an Institutional Review Board. You can reach them at (508) 856-4261 or irb@umassmed.edu if you would prefer to speak with someone not associated with the study or have questions about your rights as a research subject.

Again, you can find the fact sheet for the study here.

If you have questions in general about #hcsm, or this particular #hcsm chat, you may also ping me (@DanaMLewis or to the @HealthSocMed account) with any questions!

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#hcsm – November 15, 2015

Topics:

  1. Should health care organizations or brands (including individuals) be tweeting about Paris, and related topics? Why/not?
  2.  How transparent should HCPs be about sharing bad outcomes online? Does voluntary vs. non-voluntary reporting impact trust?
  3.  What happens if a HCP offends someone by something they say online – and what does it mean if that person is their patient?

Don’t forget – if you’d like to submit a topic for a future #hcsm chat, you’re welcome to! Read the details on the different ways to submit a topic for a #hcsm chat. Also, if you missed the chat, or want to add additional thoughts & feedback to the above discussion topics, leave a comment & keep the discussion going!

 

 

#hcsm – November 8, 2015

Topics:

  1. HCPs can prescribe apps – but should they? What makes a good health app? Should apps Rx’s come w an expiration date?
  2. Yes, HIPAA. But when there’s not HCP/hospital/system involved, do we worry overmuch about privacy @ cost of HC innovation?
  3. How do pts & HCPs handle burnout & information overload after they’ve been in their online communities a while? Tips/ideas?

Don’t forget – if you’d like to submit a topic for a future #hcsm chat, you’re welcome to! Read the details on the different ways to submit a topic for a #hcsm chat. Also, if you missed the chat, or want to add additional thoughts & feedback to the above discussion topics, leave a comment & keep the discussion going!

 

 

#hcsm – November 1, 2015

Topics:

  1. what have we learned from social media about how patients and health care providers each prefer to communicate?
  2. Communication=key, but we need HC to communicate w/pts outside of doc office for better outcomes. Who should do this? Why?
  3. Does advertising impact credibility in online HC forum, or doc or pt blog? Would you allow advertising on yours? Why/not?

Don’t forget – if you’d like to submit a topic for a future #hcsm chat, you’re welcome to! Read the details on the different ways to submit a topic for a #hcsm chat. Also, if you missed the chat, or want to add additional thoughts & feedback to the above discussion topics, leave a comment & keep the discussion going!

 

 

#hcsm – October 25, 2015

Topics:

  1.  How can patients use SM to learn “the rules” for engaging their doctors and the healthcare system? (And what are the rules?)
  2. What roles and responsibilities should patient key opinion leaders (KOL’s) have online? Actually,what makes a patient a KOL?
  3. Also on KOLs (Key Opinion Leaders) – how does social media impact KOL roles? For doctors? For patients?

Don’t forget – if you’d like to submit a topic for a future #hcsm chat, you’re welcome to! Read the details on the different ways to submit a topic for a #hcsm chat. Also, if you missed the chat, or want to add additional thoughts & feedback to the above discussion topics, leave a comment & keep the discussion going!

 

 

#hcsm – October 18, 2015

Topics:

  1. Patients – do you check the digital footprint of your providers? Why/not? Does it matter what they’re doing online?
  2. Is there an information gap between patients & providers online? If so, why? What do pts want that providers aren’t doing?
  3. Are online communities the same as pt support groups?What can IRL support groups learn from online communities & vice versa?

Don’t forget – if you’d like to submit a topic for a future #hcsm chat, you’re welcome to! Read the details on the different ways to submit a topic for a #hcsm chat. Also, if you missed the chat, or want to add additional thoughts & feedback to the above discussion topics, leave a comment & keep the discussion going!

 

 

#hcsm – October 11, 2015

Topics:

  1. HCPs, whether or not surgeon, what do you think about recent hashtags like ? What do patients think of it?
  2. should HCPs also pay attention (as T1) to what pt experiences/lives are like? Why/not? How might we show more pt exp on SM?
  3. will patients have to fight, or will HCPs eventually support getting patient-generated data into the HC record? Why/not?

Don’t forget – if you’d like to submit a topic for a future #hcsm chat, you’re welcome to! Read the details on the different ways to submit a topic for a #hcsm chat. Also, if you missed the chat, or want to add additional thoughts & feedback to the above discussion topics, leave a comment & keep the discussion going!

 

 

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